Hi, book friends! Crossposting this update from my self-care blog in case any of you are interested in listening to my brief podcast appearance about living with chronic pain.
Happy Friday! In lieu of my usual Feel Good Friday content, I’m writing today with some pretty cool personal news–I’m on an NPR podcast!
I’ve been sitting on this news awhile because I tend not to trust things until I know they exist, but now that the episode is out into the world, I can finally share that I sat down with a podcast producer for The Pulse last month to talk about my experience with chronic pain (specifically, occipital neuralgia, which I developed in late 2018 and have been living with ever since).
They reached out after coming across an essay called “I Feel Like a Chronic Pain Imposter–Then, The Next Flare Hits” which was in Invisible Illness on Medium last year, and it’s one of the coolest things that’s come about as a result of my writing (thus far).
I’m a brief soundbite at the start…
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I can not imagine what this must be like, AmandaKay. I have never heard of occipital neuralgia, but it seems that many have it. I don’t understand why it takes so long to get a doctor to believe a female when they have issues.
Thank you, Carla. It is incredibly frustrating, but I’m grateful that I have good health insurance and have been able to keep pushing.
I just went and googled occipital neuralgia and I just can’t imagine living with chronic pain like this. You’re so brave to help spread the word about this and other forms of chronic pain to the world.
Thank you, Wendy! You do kind of get used to it, and thankfully I have a decent treatment regime that cuts down on the pain days.